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Haley Is My Hero

"A hero is an ordinary individual who finds strength to persevere and endure in spite of overwhelming obstacles."

~ Christopher Reeves



Nap-time/Nocturnal Seizures...

Posted by haleyismyhero on March 5, 2014 at 8:35 AM

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As Dravet syndrome progresses, the seizures migrate to nocturnal episodes.  At this point in Haley's life ANYTIME she falls asleep, the seizures seem to appear.  It is either in small twitches or a full generalized tonic clonic.  This is just one week of seizures that we saw at the end of February.  This is WHY we are fighting for Medical Cannabis for Haley.

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