As I see so often posted in blogs...wow, it has been awhile since I last wrote...  Time flies when you are having "fun".  Well, not really that much fun, but life is happening and there is little time to write.  So much has happened since my last post, let me catch you all up to date.

Haley's Dravet Story Video:

I had my first try at making a video of Haley's Dravet story.  It was a bittersweet experience.  I think it w...

Where does time go? I have meant to write to let you all know how things are going with Haley and our family. Thanks to all of you that have inquired. I will try to update more regularly in the future.

The last time I wrote Haley had just started Banzel. Initially it was wonderful for her. We saw noticeable decreases in the generalized tonic-clonic seizures (grand mal), but we also saw an appearance of some complex partials, myoclonics and drops. Every medication has it tradeoffs. We ma...

Haley started a new medication last week.  The new addition brings her pharmaceutical “cocktail” up to a four drug mixture.  Haley has been on over a dozen different medications and combinations of medications since she was two years old.  None of which have controlled her se...

One of the co-morbid conditions that come along with Dravet syndrome seems to be flat feet with ankle pronation (ankles turning inward).   Up until last year Haley did not have too much troubl...

We had an awesome weekend in Virginia Beach!  We were invited by David Nova to attend the American Striper Association's (ASA) final tournament and 2008 Awards Ceremony.  We in turn invited representatives from the IDEA League since David said he would like to present a check to them.  Thank you Laura Cossolotto, IDEA League pre...

"How are your kids doing?"  Is a question I hear almost daily.  I know some hesitate to ask because they do not want to hear bad news about Haley.  The question is a difficult one to answer on a daily basis.  One day can be terrific for Haley.  She can do well at school, want to eat, be full of laughter and very agreeable.  The next day could be a different story, three seizures before waking up.  Valium administered....then we have a walking zombie...someti...